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Two-year-old Leni Forrester diagnosed with childhood dementia

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Open Questions

5 questions
What specific treatment is being developed in the US clinical trial, and what is its current status?
What is the UK government's response to the call for funding research and clinical trials for Sanfilippo syndrome?
How many children in the UK are currently affected by Sanfilippo syndrome?
What are the exact symptoms Leni Forrester is currently exhibiting, and how is her condition progressing?
What support systems or resources are available to families of children with Sanfilippo syndrome in the UK?
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