A mother in Umeå, Sweden, cannot access her 13-year-old daughter's healthcare information on the 1177 platform due to privacy rules. The daughter, who has an NPF diagnosis and is enrolled in child and youth psychiatry, received a text message from Region Västerbotten about a booked healthcare appointment, but it did not specify the clinic. The parents could not log into 1177 to get more details because access is blocked for parents when children turn 13.
The daughter eventually logged in but only saw a dentist appointment, not the new booking. The mother called 1177 and was advised to visit the nearest healthcare facility to ask. The age limit aims to protect teenagers' integrity, but it has drawn criticism from groups like the Barncancerfonden for hindering parents' ability to help sick children.
Inera, responsible for 1177, has proposed raising the age limit for parental access to journals from 13 to 15 years, but approval from all regions is needed, and implementation will take at least a year. Parents can apply for extended access to specific clinics until children turn 18, and children can request early access to their own journals at age 13. Children under 16 can log into 1177 with e-identification to see booked appointments but need clinic approval for bookings or prescription renewals.