Andreas Rixer has started a petition calling for changes to healthcare guidelines after his 12-year-old daughter Maia reportedly receives insufficient incontinence pads from regional healthcare services. According to SVT Värmland, Maia Rixer has Sanfilippo syndrome, a form of childhood dementia where children gradually lose abilities such as speech and motor skills. The family reportedly receives seven incontinence pads per day from the regional healthcare service, which exceeds the local standard limit of six pads daily.
However, Maia typically uses around eleven pads per day, creating a significant shortfall. " The father has experience with medical equipment shortages from his family's previous situation - their eldest daughter Saga, who passed away a year ago, also had Sanfilippo syndrome and reportedly faced similar challenges with inadequate incontinence supplies. Andreas has launched the petition hoping healthcare providers will reconsider guidelines and restrictions on incontinence pads for patients with special needs.
We will pay the extra costs so Maia can have a dignified life, but I think there are many who cannot bear those costs.